A Cancer Survivor Looks Back

What would you do if you found out your 5-year-old had cancer?

In February of 2000, Matt and Mary Ferrick noticed their son was limping, and they did what any parent would do - they brought him to the doctor. Scans revealed that a previously-undetected tumor in his stomach had now spread to his hip. Jay was rushed 100 miles from their home in Ukiah to UCSF to be treated for stage 4 neuroblastoma. Pulled out of kindergarten, he was admitted to the hospital, and his family stayed at Family House on and off for 14 months while he underwent chemotherapy, radiation, surgery, and a stem cell transplant.

"One thing I remember about the Family House is that I always looked forward to going.  Especially I remember because there were video games in the downstairs living room, and me and my little brother looked forward to playing video games because we didn't have them at home," recalls Jay, now 19 years old and a healthy sophomore at Chico State.

"Jay is doing very well, he lives a normal life, and is able to do everything that everybody else does.  He's been 12-13 years in remission now.  Of the type of cancer he had, 70% of the kids relapse, but Jay has been healthy since he completed his treatment. It's been a blessing to put it in the rear view mirror," says his father, Matt.

"Family House provided support for the whole family…  [For Jay's younger brother, Thomas,] having a sibling who's getting all the attention - some people really struggle with that, feeling they're in the background…. we've always tried to make them feel equal." Playing Nintendo in the Family House living room was a highlight for both boys. "[Thomas] thought it was a big thrill to go to San Francisco and see his big brother;" at only 3 years old at the time, he couldn't comprehend the seriousness of the situation, Matt recalls.

Jay's oncologist, Dr. Katherine Matthay, says that "Neuroblastoma is a very, very serious cancer that we find only in young children. More than 50% of children already have the cancer spread to their bones and their bone marrow at the time the cancer is detected." At the time of Jay's diagnosis and treatment, fewer than 15% of children survived metastatic neuroblastoma.

Dick and Anne Grace of Grace Family Vineyards are longtime Family House supporters, and have even awarded a grant to Dr. Matthay for cancer research. The targeted radiotherapy treatment that was developed from that grant is now one of the most active treatments for widespread and resistant neuroblastoma.  Dick says, "Annie and I had the extraordinary privilege of walking a portion of Jay's cure path alongside both he and his family, and it was there that we got the opportunity to see the courage and see the commitment and the resolve that he had in navigating this path."

Looking back, Jay hopes that his battle with cancer will be an inspiration to others who are currently undergoing treatment. "When we go to UCSF, we visit '7 Long,' the floor I was on, and I see all the kids there, and I hope that they see how I am, and hope that they can be cured and be a regular kid like me."

We are delighted that the Ferricks continue to be part of the Family House family!

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20th Annual Jordan & Kyra Memorial Golf Tournament

 Perfect weather, good friends, and a great cause: the 20th Annual Jordan and Kyra Memorial Golf Tournament on Friday, October 18th. Picture getting together with 150 of your golf buddies for your annual day-in-the-sun, all benefiting the Jordan & Kyra Memorial Foundation.  The Jordan & Kyra team went all-out with decorations at the Seascape Golf Club in Aptos, California - including photo boards with pictures from the last 2 decades.

The Jordan & Kyra Memorial Foundation was created in memory of Jordan Stuart and Kyra Pillsbury, and raises money for brain tumor research, and to provide free housing at Family House in San Francisco. Both Jordan and Kyra, along with their families, were guests at Family House before they lost their battles with cancer.  This annual event is a great way to cherish their memories, and keep their playful spirits alive through hope, dignity, and comfort of families currently undergoing treatment for cancer and other life-threatening illnesses.

Congratulations to the Jordan & Kyra team for putting on such a successful event, and to all of the donors, volunteers, and attendees - this event shines because of you!

To see more event photos, visit:
http://on.fb.me/1dEjHpP

To learn more about the Jordan & Kyra Memorial Foundation, visit: http://www.jordanandkyra.org/

Jarren Fogle's Inspiring Story

It only takes about ten seconds with Jarren Fogle to see that nothing— including his diagnosis with medulloblastoma— will slow him down.  Diagnosed earlier this summer at age two, Jarren started his treatment with surgery and three rounds of chemo in Madera.  But when a stem cell transplant and high-dose chemo were needed, he was transferred to UCSF Benioff Children's Hospital to finish his treatment.

Jarren is a bundle of energy, with an infectious smile that he hides behind his hands during a lively game of "peek-a-boo".  He snuggles up to his mom, Danielle, on a cozy chair in the Family House living room.  When asked about their time in the house, Danielle lights up.  After being secluded for three months in a hospital room in Madera, she was nervous to move into a house with other families.  But her worries were relieved once she arrived.  "It's a blessing to have the security, knowing that you have somewhere to stay when you're going through tough times like this."

Danielle instantly noticed a difference in her son once his tumor was removed— he began reciting his numbers and colors, even naming shapes that Danielle swears she never taught him!  These days, he’s got plenty to talk about, including all the details of his third birthday.  Jarren celebrated at Family House on November 14th, complete with a Mickey Mouse cake and a visit from his dad and grandma.  Next week, Jarren and Danielle hope to take a road trip to celebrate Thanksgiving at the home of another family who were living at Family House when they moved in.

Today, all traces of his tumor are gone.  And although he has a few more months of treatment, Danielle sees the light at the end of the tunnel and looks forward to her next chapter with a happy, healthy son.  “Most people never meet their hero,” she says, “but I gave birth to mine.”

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html 

Re-Mission

Re-Mission

A screenshot from the game

                Here at Family House we recently got a donation that we can’t wait to share with our guests and anyone else who may have children battling cancer. It started with HopeLab (visit www.hopelab.org for more information), a nonprofit organization founded in 2001 and their mission to combine the highest standards of scientific research with innovative solutions to improve the health and quality of life of young people with chronic illness. They then developed a wonderful video game called Re-Mission (visit www.re-mission.net ) in which kids assume the role of Roxxi—an armed nanobot who works through various missions to battle colonies of microscopic cancer cells and save the healthy organs.  

This game focuses on helping the issue of medication adherence, which is a complex problem for teens and adolescents with cancer. They typically have numerous prescriptions that change frequently and have quite toxic adverse effects. These young people need intense support to help make medication adherence a priority. In the randomized trial, patients who played Re-Mission were more likely to adhere to their oral medications. Not only did they enjoy the game, but their improved adherence may possibly lead to improvements in overall health.

Re-Mission is a fun video game for kids and it can be a welcome distraction from the side effects of the disease and the medication that treats it.  It is also a helpful learning tool for children who may not understand cancer and its effects on the body. Moreover, Re-Mission empowers siblings. It provides a way for them to learn and understand cancer and treatment in their time and on their terms. Re-Mission provides a way for kids with cancer and their sibling to join together in the fight against cancer – and begin to talk about cancer.

We are excited to share this fun, educational, empowering game with our Family House adolescents and teens, and hopefully it can make a difference both in medication adherence as well as their understanding of the disease. For our families that are back home, or for anyone at all who might find this a useful tool, you can simply visit the website and download or order copies of the video game for free. We’d love to hear feedback on what families think of the game!

The Atwood Family Story

Karissa, Luke, John, and Laci @ Family House

The Atwood family is currently facing an illness that changed their life in an instant. Only two months ago, on February 21st of this year, parents John and Karissa learned that their youngest child Laci had cancer. After the diagnosis of embryonal botryoid rhabdomyosarcoma—which is one of the more common, tumorous forms of childhood cancers—the Atwood’s life has been a whirlwind. As it turned out, although Laci had a common type of cancer, hers was incredibly rare in its location; located in her ear and temporal bone, less than one millimeter from her brain, surgery was not an option. What all of this meant was that Laci was now classified as having Stage III cancer and would have to undergo a 42 week treatment plan, involving both chemotherapy and radiation.

The Atwood’s immediately began the treatment process at their home in Fresno, CA, but were halted shortly thereafter when their hospital’s radiation machine broke. John, Karissa, Laci, and 5 year old brother Luke were forced to move quickly: it was 9 PM the night they learned that they needed to be transferred up to San Francisco, and they had to be at UCSF Benioff Children’s Hospital by 9 AM the next morning. The family remembers being told that they were going to stay at Family House, and that everything was already set up for their arrival. However, John was skeptical at first—a feeling that many families may have upon their impending arrival to this new home away from home.  He laughed, confessing that on that first night he took his family to stay at a hotel instead.

After being here for over three weeks, John was happy to share that his feelings of uneasiness about coming to Family House have completely subsided. He noted that even if his family could afford a different living situation while up here in San Francisco, they would still choose to be at Family House. He summed it up, saying that they “wouldn’t do it any other way”. When asked what they like most about Family House, John and Karissa agreed that the feeling of community between all the families staying here is one of the best perks. Whether they are connecting with families going through the same diagnosis that they are, or whether they are learning about different situations than theirs, the Atwood’s appreciate being able to share this time with a new, inner support group. In fact, they said that they have formed life-long friendships in the few weeks that they have been here. These newly formed friendships, as well as the supportive staff, have led John to remark that by being here he has changed for the better.