Kayden Langley was born with Pelizaeus-Merzbacher Disease (PMD) an extremely rare disease in which the individual is born without a myelin sheath, the fat and protein covering--which acts as an insulator--on neural fibers in the central nervous system. This leaves the individual hypotonic, making it difficult to hold up their head, due to their low level of muscle development. Motor abilities for these individuals are delayed or never acquired. Muscle contractures or the shrinkage of muscle often occur over time and mental functions may deteriorate as well due to the disease. These side effects are just some of the listed symptoms connected to PMD. Currently there is no cure for this disease, nor a standard course of treatment.
Mother Teresa once said, "We can do no great things; only small things with great love." As I looked on to Kayden and Jaime that day I realized for the first time what that quote really meant and how Family House makes it possible for all of our Families and Staff to do what we can with great love.