Showing posts with label life-threatening illness. Show all posts
Showing posts with label life-threatening illness. Show all posts

Tuesday, February 5, 2019

Book Review: When Your Child is Sick, A Guide to Navigating the Practical and Emotional Challenges of Caring for a Child Who is Very Ill


Book Review: “When Your Child is Sick, A Guide to Navigating the Practical and Emotional Challenges of Caring for a Child Who is Very Ill” Written by Joanna Breyer, PhD



I had the great pleasure of meeting Joanna Breyer last month as she toured Family House.  She was in town as she put it, “to see that this book of hers landed in the hands of the people who would benefit from it the most.”  Ms. Breyer is a psychologist who has worked with children with cancer and their families for over 25 years at Dana-Farber Cancer Institute and Boston Children’s Hospital. This book is meant to serve as a comprehensive guide for families navigating the most uncertain and difficult circumstances of having a child diagnosed with a life-threatening illness.  She informed me that she intends for the book to be used as a resource guide; as different parts of the book will be relevant to families at different times. The book is presented in three sections.  Part I is on treatment, which includes everything from entering into the medical world, to coping techniques, being a parent to your other children, medications, to stem cell transplants and sibling as donors.  Part II discusses survivorship.  She writes about surviving Cancer, dealing with the emotional effects of a serious childhood illness, healthy living, and transitioning to adult medical care.  In a very compassionate tone, Part III addresses the topic of when your child’s treatment does not work.

Ms. Breyer’s decades of experience and dedication to the families and children she has worked with throughout her career is felt on every page.  It just might be one of those books that finds a home on your shelf to refer to as you manage the multiple practical and emotional complexities of this unimaginably difficult time in your life.  I highly recommend it.




This book review was written by Family House Social Worker Elan Slavin, MSW, as a resource we recommend. It can be purchased here:  https://smile.amazon.com/gp/product/0147517583/ref=dbs_a_def_rwt_bibl_vppi_i0

Monday, April 2, 2018

Family House Impact



Watch the latest Family House video - Family House Impact - https://youtu.be/3KvX68lCR9A

Tuesday, December 5, 2017

Giving Tuesday Success

Thank you to the many caring individuals whose generous #GivingTuesday gift to Family House helped us exceed our fundraising goal by 76% - we raised over $17,500 in just one day! And thanks to our Matching Gift Challenge, those dollars will be doubled, and even tripled in some cases (for gifts made by Family House volunteers).

We know that there are many great organizations you could choose to support, but as our founder, Dr. Art Ablin, always said: We believe there are none better. Your gift will make a huge impact for all the kids and families who stay under our roof, and help to provide a safe, comfortable, supportive home away from home for nearly 150 families.

Thanks again for being a partner in our efforts, and best wishes from our family to yours for a very happy and healthy holiday season.

With Gratitude,

Joanne Gold
Chief Development Officer

Tuesday, September 12, 2017

Family House Family Stories: Gina’s Boys


Family House Family Stories: Sharing the brave and inspiring stories of families of children with cancer and other life-threatening illnesses. This story features Gina, mom to four boys, two of whom have a rare genetic disease that requires treatment at the UCSF Benioff Children’s Hospital. Hear from Gina about the positive impact that Family House has had on their family, and the ways that they try to pay it forward.

Monday, July 17, 2017

Family Stories: Ja'Ceon and Dannie - Opening Doors


When Dannie was offered an experimental new treatment option to save her nephew, Ja’Ceon, she said, “If there’s a chance to save another kid’s life, let’s do it.” Watch the video featuring this courageous family.