A Cancer Survivor Looks Back

What would you do if you found out your 5-year-old had cancer?

In February of 2000, Matt and Mary Ferrick noticed their son was limping, and they did what any parent would do - they brought him to the doctor. Scans revealed that a previously-undetected tumor in his stomach had now spread to his hip. Jay was rushed 100 miles from their home in Ukiah to UCSF to be treated for stage 4 neuroblastoma. Pulled out of kindergarten, he was admitted to the hospital, and his family stayed at Family House on and off for 14 months while he underwent chemotherapy, radiation, surgery, and a stem cell transplant.

"One thing I remember about the Family House is that I always looked forward to going.  Especially I remember because there were video games in the downstairs living room, and me and my little brother looked forward to playing video games because we didn't have them at home," recalls Jay, now 19 years old and a healthy sophomore at Chico State.

"Jay is doing very well, he lives a normal life, and is able to do everything that everybody else does.  He's been 12-13 years in remission now.  Of the type of cancer he had, 70% of the kids relapse, but Jay has been healthy since he completed his treatment. It's been a blessing to put it in the rear view mirror," says his father, Matt.

"Family House provided support for the whole family…  [For Jay's younger brother, Thomas,] having a sibling who's getting all the attention - some people really struggle with that, feeling they're in the background…. we've always tried to make them feel equal." Playing Nintendo in the Family House living room was a highlight for both boys. "[Thomas] thought it was a big thrill to go to San Francisco and see his big brother;" at only 3 years old at the time, he couldn't comprehend the seriousness of the situation, Matt recalls.

Jay's oncologist, Dr. Katherine Matthay, says that "Neuroblastoma is a very, very serious cancer that we find only in young children. More than 50% of children already have the cancer spread to their bones and their bone marrow at the time the cancer is detected." At the time of Jay's diagnosis and treatment, fewer than 15% of children survived metastatic neuroblastoma.

Dick and Anne Grace of Grace Family Vineyards are longtime Family House supporters, and have even awarded a grant to Dr. Matthay for cancer research. The targeted radiotherapy treatment that was developed from that grant is now one of the most active treatments for widespread and resistant neuroblastoma.  Dick says, "Annie and I had the extraordinary privilege of walking a portion of Jay's cure path alongside both he and his family, and it was there that we got the opportunity to see the courage and see the commitment and the resolve that he had in navigating this path."

Looking back, Jay hopes that his battle with cancer will be an inspiration to others who are currently undergoing treatment. "When we go to UCSF, we visit '7 Long,' the floor I was on, and I see all the kids there, and I hope that they see how I am, and hope that they can be cured and be a regular kid like me."

We are delighted that the Ferricks continue to be part of the Family House family!

Follow us on Facebook to see the latest on some of our amazing families:  http://facebook.com/FamilyHouseSanFrancisco

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html

Sign up for our newsletters to stay in the loop on all Family House news: http://www.familyhouseinc.org/newsletter.shtml#newsletterform

Re-Mission

Re-Mission

A screenshot from the game

                Here at Family House we recently got a donation that we can’t wait to share with our guests and anyone else who may have children battling cancer. It started with HopeLab (visit www.hopelab.org for more information), a nonprofit organization founded in 2001 and their mission to combine the highest standards of scientific research with innovative solutions to improve the health and quality of life of young people with chronic illness. They then developed a wonderful video game called Re-Mission (visit www.re-mission.net ) in which kids assume the role of Roxxi—an armed nanobot who works through various missions to battle colonies of microscopic cancer cells and save the healthy organs.  

This game focuses on helping the issue of medication adherence, which is a complex problem for teens and adolescents with cancer. They typically have numerous prescriptions that change frequently and have quite toxic adverse effects. These young people need intense support to help make medication adherence a priority. In the randomized trial, patients who played Re-Mission were more likely to adhere to their oral medications. Not only did they enjoy the game, but their improved adherence may possibly lead to improvements in overall health.

Re-Mission is a fun video game for kids and it can be a welcome distraction from the side effects of the disease and the medication that treats it.  It is also a helpful learning tool for children who may not understand cancer and its effects on the body. Moreover, Re-Mission empowers siblings. It provides a way for them to learn and understand cancer and treatment in their time and on their terms. Re-Mission provides a way for kids with cancer and their sibling to join together in the fight against cancer – and begin to talk about cancer.

We are excited to share this fun, educational, empowering game with our Family House adolescents and teens, and hopefully it can make a difference both in medication adherence as well as their understanding of the disease. For our families that are back home, or for anyone at all who might find this a useful tool, you can simply visit the website and download or order copies of the video game for free. We’d love to hear feedback on what families think of the game!